Want more information? See our main all-in-one summary paper:
More papers for interested newbies and the public:
Major HFME M.E. papers:
The main paper you need if you have a ‘CFS’ non-diagnosis:
More about the ‘CFS’ non-diagnosis and why M.E. is not 'CFS’:
More HFME resources / tools:
Unfortunately when it comes to information on M.E. there is always far more bad than good available and so it is just as important that you are aware of what information to avoid as well as what is useful. The ME books best avoided section contains a list of books which are not recommended because they; do not distinguish appropriately (or at all) between mere fatigue and the neurological disease M.E., offer inappropriate medical advice which may help some fatigue sufferers but is inappropriate or dangerous for people with M.E., offer unrealistic expectations of response to treatment and recovery based on confusion with mere fatigue sufferers, or they propagate many of the myths and propaganda about the illness which do the M.E. cause (and community) so much harm.
Add to this list of resources to avoid, any book, website, newsletter, TV segment, radio segment, newspaper article, research – or anything else that; uses the term ‘chronic fatigue’ in the title, or which uses the term ‘chronic fatigue’ interchangeably with CFS or CFIDS or M.E. anywhere in the text, which claims that the illness is a new 21st Century disease caused by the ‘busy stressful modern world’ or your supposed perfectionist personality (even if you happen to have one it’s irrelevant and didn’t cause you to get M.E.), or which claims that the illness can be easily cured with exercise, psychotherapy, stress reduction, an anti-Candida diet, various vitamins and other treatments or anything else. (Titles like ‘From Fatigued to Fantastic’ should set all your alarm bells ringing!)
Also avoid anything which talks about M.E. being: ‘mysterious’ or ‘medically unexplained’ or ‘an amazing illness which crosses the boundaries between the body and the mind,’ of having no tests which can aid diagnosis, of even being an illness where ‘no tests have ever shown anything,’ or which claims that the illness is a problem of fatigue following glandular fever, or that the illness is caused by the Epstein-Barr virus, herpes, glandular fever or Candida, can be caused by stress or trauma, or is the same illness as Fibromyalgia or Lyme disease anything else. These are all just useless and harmful ‘CFS’ myths and propaganda; they have nothing to do with authentic M.E. and legitimate science.
For more on some of the most common myths of M.E. see M.E. Activism and Advocacy, The myths about Myalgic Encephalomyelitis and Research and Articles in Context. See also: What is M.E.?, and M.E. books best avoided
Living with and coping with M.E. is no easy feat and so of course it is impossible to cover everything you could need to know in these few hundred pages but hopefully every M.E. sufferer and every parent of a child with M.E. reading this will have found something here that perhaps you were not aware of before, and that is helpful in some way.
The treatments listed here are not any type of miracle cure, and no promises can be made about outcomes; that treatment a, b and c together will always give you outcome d. The aim here is to give your body its best possible chance to at least partly heal itself by giving it some of the basic tools and materials it needs in order to heal. No level of improvement is guaranteed, just the best chance there is at achieving the level of improvement possible for YOU - and lowered risk of developing secondary diseases.
The message here is not to reject every part of mainstream medicine, and that you don’t need a doctor and can do everything yourself. It’s about coming at the problem of M.E. from all sides. It’s a huge problem and we need to throw everything at it that we can, all at once! We need to make sure we work in partnership with our doctors (if at all possible). Listening to what they say and getting any tests necessary and so on, while also making sure our bodies have all the extra vitamins and minerals they need to heal and to prevent secondary diseases, and that we also do all those things which are so important to our health but which are out of our doctor’s hands. In M.E. that means aggressive rest therapy, minimising stress, eating a good diet, avoiding toxic chemical exposures and so on.
Don’t let anyone tell you ‘there is nothing at all that can be done’ to treat M.E. What you do can have an enormous – positive or, unfortunately, negative – impact on the course of your disease. You are not completely powerless here, not at all.
The very best of luck – and health – to you all.
Note that the aim of this site is to provide a starting point for health and healing research for ill people; especially very overwhelmed and disabled ill people. This site provides recommendations, summaries and reviews of books but is not meant to be a replacement for actually reading some of these wonderful health books if the reader is at all well enough to do so. (Plus getting individualised advice from a doctor that is also an orthomolecular medicine expert if possible). There is no substitute for reading as many of these books as you can. The HHH site can only really hint at their full brilliance. The amount of insight, scientific references, logic, intelligence, compassion and experience in the recommended books will most likely amaze you. HHH aims to encourage people to do their own reading and learning, and to always make up their own minds. All content copyright Jodi Bassett 2006 - 2014.